{"id":1374,"date":"2020-08-19T13:45:34","date_gmt":"2020-08-19T13:45:34","guid":{"rendered":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/?page_id=1374"},"modified":"2020-09-10T09:25:26","modified_gmt":"2020-09-10T09:25:26","slug":"delicate","status":"publish","type":"page","link":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/ch20\/delicate\/","title":{"rendered":"More to explore about delicate children"},"content":{"rendered":"<blockquote><p>I think we were lucky in not doing these little people more harm than breaking a cow&#8217;s leg and a church. They are all so brittle!<\/p><\/blockquote>\n<p>Some people are born with medical conditions that make them as brittle as china.<\/p>\n<p>Explore these websites and videos to find out more about some of these conditions.<\/p>\n<p>Some children are born with the condition epidermolysis bullosa (or butterfly skin).\u00a0Can you imagine living in a world where everything could hurt you? Are there things which you enjoy that you would not be able to do anymore?<\/p>\n<p>Find out more at <a href=\"https:\/\/www.debra.org.uk\/what-is-eb\/what-is-eb\" target=\"_blank\" rel=\"noopener noreferrer\">Debra: for people whose skin doesn&#8217;t work<\/a><\/p>\n<p>Some children have bones so delicate they break at the slightest pressure. Learn more about Ostegenesis Imperfecta or brittle bones at the <a href=\"https:\/\/brittlebone.org\/what-is-oi\/about-oi\/\" target=\"_blank\" rel=\"noopener noreferrer\">OI website<\/a>.<\/p>\n<div class=\"jetpack-video-wrapper\"><iframe loading=\"lazy\" title=\"One-2-One: Penny Clapcott\" width=\"660\" height=\"371\" src=\"https:\/\/www.youtube.com\/embed\/aCESSO97Q9c?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p>Another condition that makes children delicate is albinism. These children are born without pigment in their skin. People with this condition are super sensitive to sunlight. To learn more watch this video.<\/p>\n<div class=\"jetpack-video-wrapper\"><iframe loading=\"lazy\" title=\"The Besties With Albinism | BORN DIFFERENT\" width=\"660\" height=\"371\" src=\"https:\/\/www.youtube.com\/embed\/sF2C-CeD6xQ?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<p>&nbsp;<\/p>\n<h4><span style=\"color: #993300\"><strong>Challenge yourself!<\/strong><\/span><\/h4>\n<p>A young person with one of the above conditions (butterfly skin, brittle bones or albinism) that makes them delicate, is starting your school next week.<\/p>\n<p>You have been asked to help create a room where they will feel safe.\u00a0Can you design a classroom specially adapted to their condition?<\/p>\n<p>Think about their condition and what adaptions could help them to feel safer and more comfortable.\u00a0The room should contain a desks, chairs, teacher\u2019s desk and chair and anything else you think is needed.<\/p>\n<p>You can draw, make a model or write a description of your design.<\/p>\n<p>You can also look at the <a href=\"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/help\/\" target=\"_blank\" rel=\"noopener noreferrer\">Help with Challenges<\/a> page to come up with your own delicate challenge.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>I think we were lucky in not doing these little people more harm than breaking a cow&#8217;s leg and a church. They are all so brittle! Some people are born with medical conditions that make them as brittle as china. Explore these websites and videos to find out more about some of these conditions. Some &hellip; <a href=\"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/ch20\/delicate\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">More to explore about delicate children<\/span><\/a><\/p>\n","protected":false},"author":2376,"featured_media":0,"parent":46,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1374","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/pages\/1374","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/users\/2376"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/comments?post=1374"}],"version-history":[{"count":4,"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/pages\/1374\/revisions"}],"predecessor-version":[{"id":1596,"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/pages\/1374\/revisions\/1596"}],"up":[{"embeddable":true,"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/pages\/46"}],"wp:attachment":[{"href":"https:\/\/blogs.glowscotland.org.uk\/nl\/schliboz\/wp-json\/wp\/v2\/media?parent=1374"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}